URMILA, A STORY OF WOMEN EMPOWERMENT

URMILA, A STORY OF WOMEN EMPOWERMENT

To celebrate the international day against violence on women we want to share with Urmila’s story, a story of strength and empowerment, a big example of women’s emancipation, coming from a slum in Jaipur where she works with our Navchetan’s children with disabilities.

We met Urmila in 2019 as she came for an interview for a Community Based Rehabilitator at our Navchetan program in Jaipur, India.

TOO CONSERVATIVE FAMILY 

Urmila had 2 children less than 5 years old and she lived with them in the slum of Jawahar Nagar, close to her husband’s family. Her husband’s family is very conservative and they didn’t allowed her to go out from the slum, neither to work … “such a bad mom, who would look after the children then?”, these where some of the comments they made to her when she shared her thoughts.

THE COURAGE OF A CHOICE

One day, in June 2019, she got the courage and went secretly to the interview, our staff met her and she confessed that honestly she had never worked and she never had met a person with disability before. For these reasons other people have been selected for this job, but those people then showed they had some prejudices related to people with disabilities, considering them of an inferior caste (unfortunately in India, especially in slums, there still are some division in castes). In september 2019 Urmila got a call from Lavina, our coordinator, who proposed her to go for a trial. Urmila was very excited about, but at the same time very worried for 2 main reasons: she didn’t know if she was going to be able to approach people with disabilities and, the most worrying, was the chance to be discovered by her husband’s family … she would have had to work with families from her slum, it’s a big slum, that’s true, but people are talking and they would have known eventually…

THE BEGINNING OF A NEW ADVENTURE

In that way the new adventure of Urmila with Navchetan began. She was a bit worried but also enthusiastic about this new challenge for her. She started to go around with our staff visiting families of children with disabilities in the slum and immediately it was evident how loving and caring she was with them, without any prejudice. She got immediately employed and supported for the first few months in order to train her about disability and to show her how to support families in defending their rights, even accompanying them in different offices or hospitals in the city.

The first she has been in hospitals or at the big center of Mahaveer she was terrified thinking that she should later bring families there and support them in these chaotic places, but then, step by step, she got confident and she became the referent for families, slowly they started to address always to her for everything related to disability and she felt recognized and valued in her work.

PROBLEMS WITH THE HUSBAND AND HIS FAMILY 

What she was fearing then finally happened, her husband’s family discovered that she started to work. Her husband got furious and they had really scary fights, relatives couldn’t stand the shame of having a “working mom” among them. Nevertheless Urmila, after starting to work for defending children’s rights, had understood that she also had rights, and she discovered she wanted to fight to see her own rights recognized, too.

Consequently she kept on working for Navchetan, in spite of her family’s disapproval and the fights with her husband, they had several tense periods and her marriage was really at risk. Anyway Urmila was convinced and she even told to her husband that she would have chosen her work instead of him, because she felt more at home in Navchetan than with her relatives.

URMILA’S ACHIEVEMENT

Step by step Urmila started to earn money and she managed to send her children to a good school, and when they were at school she didn’t feel guilty to be at work. Thanks to her salary she managed to even finish her studies and to get a degree. She’s now coordinating some families’ meeting for Navchetan and for this reason people recognize her and are thanking her when she walks around in the slum.

Seeing how she is respected among the slum also her family started to accept her work and to respect her, admitting that she made the right choice and that she became a precious resource not only for the family but also for the community.

Such a strong story and witnessing from Urmila for every women around the world who is fighting for her rights!

COMMUNITY BASED INCLUSIVE DEVELOPMENT (CBID)

COMMUNITY BASED INCLUSIVE DEVELOPMENT (CBID)

CBID is a development strategy which aims to ensure that people with disabilities are respected and included in their communities on an equal basis in all areas of life. It is people centred, community driven and human rights based.

CBID is an essential contribution to NHI’s vision and a key approach to realize the Convention on the Rights of Persons with Disabilities (CRPD) and leave no one behind in achieving the Sustainable Development Goals (SDGs). The CBID is the natural evolution of Community Based Rehabilitation (CBR) approach, developed by WHO after the Alma-Ata declaration in 1978 with the purpose of: ameliorate the quality of life of people with disabilities and their families, meet their basic needs and ensure their inclusion and participation.

In all our projects related to disability we are trying to apply the same approach, all our CBR program are now developing into CBID programs.

WHAT IS COMMUNITY BASED INCLUSIVE DEVELOPMENT?

At the beginning it was a strategy aimed to strengthen access to rehabilitation services in limited resource contexts (as former CBR), CBID is now a multi-sectorial approach aimed to ameliorate equal opportunities and social inclusion of people with disabilities, fighting at the same time the perpetual cycle of poverty and disability,working with and through local groups and institutions.

The CBID is being implemented through the combined efforts of people with disabilities, their families and communities with health, educational, professional and social services, both private or public.

CBID addresses challenges experienced by people with disabilities, their families and communities in practical ways. For example, it offers opportunities to join community based self-help groups and livelihoods activities. In the current context and drive for localization of the 2030 Agenda for Sustainable Development (SDGs), CBID is increasingly relevant. 

As the former CBR, also CBID programs can include health, education, livelihood, social and empowerment activities, working closely with local partners, local governments and disability association to bring change. CBID particularly promotes the participation and voice of people with disabilities in decision-making processes at the local level. In high risk areas, CBID programs include activities that address community preparedness and resilience for when natural and human-caused disasters strike. CBID enhances and strengthens earlier work described as CBR and encourages more inclusive, responsive and accountable communities. 

OUR STAFF                                                  

In this kind of approach a big role has been played by our partner, Don Carlo Gnocchi Foundation , which has multi-annual experience in this field in many countries. They are supporting us in disability’s field in Myanmar and they are training all our staff about this approach helping us in slowly upgrading all our projects following these principles. Such a precious collaboration!

Also in India we are following the same principles and we are training all our staff about this approach.

We deeply believe that building strong communities requires a focus on equal access to good quality services and on civic participation aimed at supporting people with disabilities, their families and organizations, to fully participate in the social, economic and political life of their communities.

Thus, CBID is an essential contribution to our Vision for a real New Humanity in which people with disabilities enjoy their human rights and achieve their full potential. 

ANGANWADI CENTERS, A COMMUNITY SUPPORT

ANGANWADI CENTERS, A COMMUNITY SUPPORT

Sunita Anganwadi

Thanks to the collaboration with the Anganwadi centers in slums we are able to grant a better future to the children with disabilities supported by our Navchetan program, in Jaipur, India.

Anganwadi centers were started by Indian government in 1975 in order to fight child mortality and malnutrition. Anganwadi means “courtyard shelter”, and they are real centers were mothers and future mothers can find a shelter. They were initially settled for rural context but during the years they spread also in urban over-crowded contexts, such as slums. Governmental plan foresees 1 every 1000 people.

Our Navchetan center is collaborating with Anganwadi centers in slums and their service is surprising.

We visited in July an Anganwadi center in Jawahar Nagar slum, in Jaipur, from where almost all our children are coming. In this center there are 4 operators: a teacher, 2 assistants and a caregiver. Apart from them there is an ASHA worker (Accredited Social Health Activitis) linked to the center, he is a community health operator  who provides health education, through vaccinations and prevention.Bambini Anganwadi

Operators are organizing in the center a small kindergarten where every morning working moms from the slum could bring their children, until 14 o’ clock. There are 30 kids attending the center, 22 more than 3 years old and 8 younger.

Mamme AnganwadiThere is also a program of assistance for pregnant women which supports nutrition in pregnancy period and until 15 days after the delivery, both for moms and babies. In this program moms are coming every day at the center for the distribution of food items and for awareness on health matters and prevention.

In order to prevent complication due to the low hygienic condition of home-deliveries, the governmental program foresees a contribution of 1000 indian rupees for every mother delivering in hospitals. Moreover, in case of female newborn, the program foresees 15.000 rupees which will be frozen in an account until the 18th birthday of the girl, generally used for organizing marriages. In this way they are restricting marriage’s age and limiting child marriages.Opuscolo Anganwadi

Sunita, the teacher director of the center, is an hardworking woman who is every day at the center, even out of her working hours, trying to help in any possible way slum’s people. For this reason she started to collaborate with our center, and give orientation to some parents of children with evident problems in developing and suggest them to address to us.

Bimbi Anganwadi

The collaboration with all Anganwadi centers is very precious to us because it allows us to have special antennas on the territory in case of new cases arising, besides of being an essential partner for our awareness campaign about prevention and rights of the people with disabilities.

Thank to these collaborations we can hope to really improve children’s life and to creat for them a better future.

A big thank to Sunita for her tireless work and to all centers we are collaborating with!

AARTI: AT THE SERVICE OF THE MOST FRAGILE

AARTI: AT THE SERVICE OF THE MOST FRAGILE

Aarti works with children with disabilities in our Navchetan center, in a slum in Jaipur, in India. She chose this job because, as she said, it allows her to be at the service of the neediest people. We report here her interview as she explains all miracles she was witness to.

Aarti is one of our Community Based Rehabilitators, she works in Jawahar Nagar slum, where she lives, at the service of families with a child with disability. She started working in Navchetan in 2019 and since then she helped more than 50 families to fight for their rights, getting certificates and obtaining pensions and other aids. She also leads a class of special education for children in primary age who attend our center. She still was a teenager when she started to work with us, 19 years old, and now she is a determined woman who also entered the school for special education that she will attend thanks to her own salary. She decided to study more in order to make her job more effective.

Here her witnessing:

“My name is Aarti, I am 23 years old and I met Navchetan when I was only 19, in June 2019. My sister told me about a new job opportunity and I registered for an interview. When sr Divya told me about the center and the kind of work they were proposing I immediately thought that it was not only a job opportunity but a real chance to serve the most fragile people: children with disability.

Before my arrival other 2 people got recruited, but they left in less than a month because they couldn’t handle this kind of children. I immediately asked why and so sisters answered me that I would be needed to do anything: cleaning them, bringing them and to meet any need they have. Therefore they asked me if I was feeling to start this job or not, I accepted the job saying that I was ready for everything.

I got immediately inspired by the work and commitment of sisters towards children. During these years I really saw concrete miracles. For example Sachin and Naman at the beginning couldn’t even grab food, now they eat autonomously and eat with a spoon or drink with a glass, Sachin even started to walk recently!

When I go to visit families at home I always tell them about all children achievements and progress in order to make them motivated and get their interest in involving children in our program, helping them make improvements in their life.

I regularly visit all children families and they are all enthusiastic of progresses their children have achieved during these years. I support families in order to get disability’s certificate and obtain in this way public aids, I am really proud of my work because now all people in the slum respect me.

At the beginning I was a bit afraid but sisters helped me and slowly showed me how to do everything, in few months I became autonomous in my work. Now almost all children got a certificate, some of them were not even registered at birth! It was as if they didn’t even exist for the government, now they are receiving a pension!

We meet some difficulties, of course, especially for the distance from the slum to the center, so some parents get worried sending their children, but most of them send them anyway because they can see how it is acting good on them.

Most troubled situations are when in one family there is one or both parents with some disability, often mental, and so it becomes hard to work effectively with their children.

I am very happy about this job because I was witness of real miracles and see children’s progresses thorough the years. Before working for Navchetan I never went out from the slum, I was always at home being afraid of going out, now I go everywhere in the city and I am confident in my work and support families going in hospitals, public offices and so on.

Coming to the center I also discovered what is special education and I got admitted to the school of special education in Jaipur. So I will become more competent and more effective in doing my work helping those children more and more.”

We only can thank Aarti and consider that we are very lucky for having found such a precious resource inside the slum, a person ready to be at the service of most fragile people.

SACHIN WALKING ON HIS OWN!

SACHIN WALKING ON HIS OWN!

Sachin lives in Jawahar Nagar slum and when we found him in 2019 he couldn’t even sit alone or grab objects, thanks to our Navchetan program he can now walk on his own and he has a lot of new friends!

Sachin was born as the firstborn child of Mr.Kishan and Suguna devi on 22.05.2014. They live in Jawahar Nagar Slum. The birth of Sachin was through a normal delivery at a hospital. His mother had aborted the first child and for Sachin she did not have pain so she was injected to get contractions and deliver. But when the child was born there was no birth cry for about two hours. So he was shifted to the pediatric hospital for three days. After that he was given breast feeding for three years. At the age of 2 years his parents realized that the child was not achieving the natural developmental milestones. So they took him to goddesses after goddesses to do worship and superstitious practices. But nothing worked out. They then took him to hospital and began treatment. But even after six months since there was no improvement they gave it up. They believed that someone has done sorcery to the child.

Sachin was found through the survey and was registered at Navchetan on 16.10.2019.  At that time Sachin was not even able to sit balancing himself. He was diagnosed as Ceribral palsy case with Spastic type. He used to fall and hurt his head often. Therefore he developed walking on knees.

He was given physiotherapy to concentrate and to balance. His parents were not so serious to do the exercises at home. He also was very playful and not interested in doing physiotherapy. But he was regular to the center. Last year he was trying to hold and walk but was falling down very often so a helmet was given to him to wear so that he does not hurt his head.  During the first year his mother had to carry and bring him to the center. But now he is able to walk holding the hands of another person. He was not able to do anything by himself including consuming food and water.

After three years continuous efforts and the new methods of the present Physiotherapist, this year he began to balance himself on his own. He was given KFO to wear at home and another to use at the centre.

He was given lot of attention and encouragement to walk on his own. He was also taken to the neurologist, who gave him tablets to energize and relax muscles and to improve the general health. Thus after great amount of PT and moral support he began to balance himself with his physiotherapist walking behind him.

It was a day of great joy for him and for all of us. He wanted the physiotherapist to go home and make his parents to see that he is walking. But the problem was his father goes for work and come back only at night.  Anyway we accompanied him home and showed his mother and aunt that he is able to walk. They were also very happy. Since at home he is not careful to wear the KFO and few days of holidays he again lost his balance. But now once again he began to make improvement and is trying to walk.

At present Sachin is a hero who is able to eat his food drink his water, dress and undress, comb and make up, toileting and cleaning, opening peanuts, peeling onions, cooked potatos, writing and reading alphabets and two letter words. Numeric he knows up to 50 to write and say. Adding is easy for him compared to deductions. He can communicate but he has got a thick tongue so clarity is less.

He is a jolly boy, loves to be in the park play a lot outdoor, enjoy friends and sing songs and love to dance. He is very choosy with food but enjoys fast food. Now he is able to walk slowly if he knows that someone is there at his back, because his anti-gravity muscles does not work and  the calf muscles are spastic therefore he is prone to walk on tow and his heals does not touch the ground.

So this is our Sachin. He loves his name because of the great Cricket player- Sachin Tendulker, and he too loves to play cricket but the bat he is unable to hold tight. He keeps talking and entertaining although during Physiotherapy and even in the vehicle while going and coming. 

Thanks to our Physiotherapist Dr.Lavina who takes a lot of effort to see that the children benefit the maximum from the program.

Thanks especially to all those who are supporting our program, you are our strength and it’s because of you that we can be witnesses opf all these miracles!

Here we share a short video of his great achievement, so thrilling!

RONAK’S REVENGE ON LIFE

RONAK’S REVENGE ON LIFE

Life is 10% what happens to you and 90% how you react to it (Charles R. Swindoll)

This is the story of Ronak: a child suffering from a form of disability who, thanks to our Navchetan centre and the support and therapy received from our rehabilitation workers, has seen his life change.

Ronak Singh Hada is an 11-year-old boy from Jawahar nagar slum of Jaipur, Rajasthan. The name Ronak means “glamour”.

His mother gave birth to him in the government hospital. She had a difficult birth with him because some complications occurred during delivery: the child had to be delivered using forceps. Furthermore, he didn’t cry at birth but looked like as he was not alive so the doctors decided to have him hospitalized in an intensive care unit for 15 days. While being there, he started having fits. The doctors did not give the child any hope to survive but Ronak managed to survive and after fifteen days he was given back to his mother.

After six months since its birth, his parents began to notice that Ronak did not behave as an ordinary child, he would not sit or stand, so they decided to consult a pediatrician and, together with him, they started working on his recovery.

During his growth, Ronak’s parents repeatedly took him to the doctor for further checkups and they discovered the child was suffering from Cerebral Palsy and that he had a medically recognized degree of disability of 90%.

Ronak is a clever boy but he cannot speak or hold himself up without support. He cannot even eat or drink by himself but he needs to be fed.

When he arrived to Navchetan center he did not want to be separated from his mother. He used to cry a lot so in order to make him stop crying his mother had to sit next to him. But, after some time, he began to sit without his mother and, thanks to the treatment program, Ronak started to kneel, hold and climb on a chair, he started extending his legs and supporting himself with his forearms.

During the Covid-19 situation he was shifted from the slum of Jaipur to another district. In April 2021 Ronak came back to the slum and he declared that he was very happy to be back to the Centre. His mother Babli told us that in the meanwhile he had become very sociable and that he had learnt to eat or to hold a pencil by himself. He tried and still tries his best to do coloring and to write numbers but his involuntary movements make those actions very difficult to be made. He also learnt how to manage the smartphone and he learnt by heart his parents’ telephone numbers. He is able to understand everything and to follow the instructions.

In November 2021 the physiotherapist suggested the use of KFO to Ronak in order to strengthen his muscles. Thanks to that tool he can now move by himself.

Ronak is a teenager now and he is very competitive. He loves doing any challenging task and any little appreciation makes him feel as if he were at the top of the world. He does not want to stay at home even just for a single day because he loves coming to the Centre every day. He likes playing outdoor games and dancing.

His parents and brother are very happy about his improvements and they hope one day he will become able to manage his own personal needs without depending on someone else.

 

If you want to know more about the project, you can find the details here